UKRAINIAN CHILDREN WITH DISABILITIES NEED HELP!

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OMNI-Net Participation at the EUROCAT Registry Leaders Meeting 2024

The EUROCAT Registry Leaders Meeting 2024 took place on 4th and 5th June at the Joint Research Centre in Seville, Spain. OMNI-Net Ukraine Birth Defects Program Registry (OMNI-Net UBDP) was represented at the meeting by Diana Akhmedzhanova, information specialist (Khmelnytskyi). During the meeting, the issues of data management, monitoring and quality, pan-European trends and clusters [...]

Participation in the ERN workshop on fetal and postnatal management in rare diseases

On June 4-6, 2023, a workshop on fetal and postnatal management in rare diseases (myelomeningocele and lower urinary tract obstruction) was held in Krakow, Poland. Due to the cooperation program of OMNI-Net, International Federation for Spina Bifida and Hydrocephalus (IFSBH), and European Reference Network “Rare Urogenital Diseases & Complex Conditions” (ERN eUROGEN) aiming to improve [...]

March 3 – World Birth Defects Day

March 3 - World Birth Defects Day. Click for more information
Congenital anomalies (CA) are the main cause of infant mortality in developed countries. The purpose of this Day around the world is to raise public awareness about the causes of CA, introduce CA primary prevention programs, expand the network of informational resources and care services for patients and their families. The problems associated with CA [...]

Fetal Alcohol Spectrum Disorders (FASD) Webinar Series

The goal of these events is the better early recognition, care and prevention of alcohol induced embryonal and child development. Presentations in English are translated into Ukrainian. Comprehensive presentations by nine experts are expanded by discussion, questions and answers contributed by additional international experts.

European Conference “Health and education outcomes of children across Europe with congenital anomalies”

On April 7-8, 2022 there will be the European Conference “Health and education outcomes of children across Europe with congenital anomalies”.  The conference welcomes healthcare professionals, academic researchers, educators, leaders in healthcare and education, students, parents and carers, and any others who work or are interested in the field of congenital anomalies. The Conference aims to […]

World Folic Acid Awareness Week

January 3-9 січня, 2022 World Folic Acid Awareness Week is an opportunity to raise awareness and increase efforts to educate women of childbearing age and mothers on the role of folic acid in the prevention of severe congenital malformations of the spine and brain. These abnormalities - spina bifida and anencephaly - are neural tube [...]

Discussion of Spina Bifida Care and Prevention Aspects

During October 21-22, 2021 I.Y. Gorbachevsky Ternopil National Medical University held an All-Ukrainian conference with international participation "Medical and social problems of childhood." As part of this conference, a section on spina bifida was held on October 22. Reports presented in the section included: Mykhailo Lovga, MD. SURGICAL CORRECTION OF SPINA BIFIDA AND HYDROCEPHALY Volyn [...]

Spina Bifida – Hydrocephaly: Care and Prevention Series of Ten Webinars in Ukrainian

THEMES Prevention perspectives (W. Wertelecki, MD, USA), 15 minutes, at the start of each webinar Prenatal perspectives – embryo-fetogenesis (Y. Melnyk, MD, Kyiv) Neurosurgery – Spina Bifida (M. Lovga, MD, Lutsk) Neurosurgery – Hydrocephaly (M. Lovga, MD, Lutsk) Long term multidisciplinary health care (O. Boyarchuk, MD, Ternopil) Neurogenic urinary bladder (V. Dydiuk, MD, Lutsk) Intestinal neurogenic dysfunctions (K. Hlushko, MD, Ternopil) Orthopedic management (V. Odarchuk, […]